Services
Testimonials
The desire to communicate in an informal way such a sensitive issue and seemingly elitist as the disease is rare, led to a special agreement. The strength of the sport, the constant effort to reach a goal, the difficulty of the athlete ... FROM THE FIELD OF PLAY IN THE BEACH TO THE FIELD OF PLAY OF DAILY LIFE
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Partners
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The CSMR has institute through agreements and protocols with different professionals and associations a desk which have the function to give assistant and medical advices for people affected by rare diseases. The main purpose is to listen and to help who needs legal and medical indications.
This is aimed to offer better service and safeguard to the weakest bracket of the population who needs healthcare but he doesn't have availability in finding information relevant to their cases. The structure of the desk is such that every expert has his collaborators, in order to interact with different patients in the area.
We are going to introduce, as soon as possible, a toll-free number where specialized operators, depending on the area o region, will put you in contact with the professional with whom we have stipulated agreements.
Online counter Rare Diseases
Bureaucratic Rules
Technical-Legal Office
Social Inclusion
Genetic Counselling
Genetics Laboratory Research Stem
Pediatric Advisory
Adult Advisory
Consultancy Clinic adulthood
Orphan drugs
SERVICES FOR THE SCHOOL
Rareducado
SERVICES FOR THE PERSON
Training Courses
Information Courses
Hospitality and taking care training
Event Office
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BEACH VOLLEY MARATHON
ļ»æSupport of Scientific Research and Information on rare diseases with the project "RAREDUCANDO" iban: IT11Z085906289000008102275
Donate your 5x1000 C.F: 92219930283